Search Results - BC Cancer Agency Library

NCCN guidelines for patients : pancreatic cancer

https://bccalibrary.andornot.com/en/permalink/catalog125007

National Comprehensive Cancer Network (NCCN). Plymouth Meeting, PA: National Comprehensive Cancer Network , 2023.

Audience: Patient or Public

Call Number: WI810 N277p 2023

Availability: 3 copies, 3 available

2 read online

Alternate Title: National Comprehensive Cancer Network guidelines for patients : pancreatic cancer

Corporate Author: National Comprehensive Cancer Network (NCCN)

Place of Publication: Plymouth Meeting, PA

Publisher: National Comprehensive Cancer Network

Publication Date: 2023

Physical Description: 76 p. : ill. ; 29 cm

Series: NCCN guidelines for patients

Subjects: Popular Work; Pancreatic Neoplasms

Notes: This resource was purchased with a donation from the Order of the Eastern Star.

ISBN: 9781960388056

Language: English

Material Type: Book; Online

Audience: Patient or Public

Location: Internet; Abbotsford Cancer Info Ctr; Victoria Cancer Info Ctr; Vancouver Library

Call Number: WI810 N277p 2023

Read Online

https://www.nccn.org/patients/guidelines/content/PDF/pancreatic-patient.pdf

https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Cancer Info Ctr			Available

Cancer management : a multidisciplinary approach : medical, surgical and radiation oncology

https://bccalibrary.andornot.com/en/permalink/catalog14754

New York, NY: Oncology Group , 2009. 12th ed.

Audience: Professional

1 read online

Editor: Pazdur, Richard

Edition: 12th ed.

Place of Publication: New York, NY

Publisher: Oncology Group

Publication Date: 2009

Subjects: Medical Oncology - handbooks; Neoplasms - drug therapy; Neoplasms - surgery; Radiation Oncology - handbooks

Language: English

Material Type: Book; Online

Audience: Professional

Location: Internet

Website Notes: Login (free registration) is required before access

Read Online

http://www.cancernetwork.com/cancer-management-12

Implementing cancer survivorship care planning : workshop summary

https://bccalibrary.andornot.com/en/permalink/catalog16154

Hewitt, Maria, Ganz, Patricia A. Washington, DC: National Academies Press , 2007.

Audience: Professional

Call Number: QZ266 I355 2007

Availability: 3 copies, 3 available

1 read online

Alternate Title: National Coalition for Cancer Survivorship and Institute of Medicine National Cancer Policy Forum workshop in partnership with the Lance Armstrong Foundation and the National Cancer Institute

Author: Hewitt, Maria; Ganz, Patricia A

Corporate Author: National Coalition for Cancer Survivorship

Place of Publication: Washington, DC

Publisher: National Academies Press

Publication Date: 2007

Physical Description: x, 309 p. : ill. ; 23 cm.

Subjects: Neoplasms - therapy; Neoplasms - psychology; Survivors; Patient Care Planning; Continuity of Patient Care; United States

ISBN: 9780309103183; 0309103185

Language: English

Material Type: Book; Online

Audience: Professional

Location: Vancouver Library; Surrey Library; Victoria Library; Internet

Call Number: QZ266 I355 2007

Read Online

http://www.nap.edu/openbook.php?record_id=11739

Copies

c.1 BC Cancer Agency SUR Library			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available

Neuroendocrine tumors : a comprehensive guide to diagnosis and management

https://bccalibrary.andornot.com/en/permalink/catalog18869

Inglewood, CA: InterScience Institute , 2009. 4th ed.

Audience: Professional

Call Number: WI435 N494m 2009

Availability: 7 copies, 7 available

Diagnosing and treating gastroenteropancreatic tumors, including IDC-9 codes; Neuroendocrine tumors in children and young adults; Clinical presentations and their syndromes, including ICD-9 codes; Assays, including CPT codes; Profiles, including CPT codes; Dynamic challenge protocols, including CPT…

1 read online

Editor: Mamikunian, Gregg

Edition: 4th ed.

Place of Publication: Inglewood, CA

Publisher: InterScience Institute

Publication Date: 2009

Physical Description: xii, 242 p. : ill. ; 23 cm.

Subjects: Neuroendocrine Tumors - diagnosis; Carcinoma, Neuroendocrine - diagnosis; Gastrointestinal Neoplasms; Pancreatic Neoplasms; Current Procedural Terminology; Child; Young Adult

Abstract: Diagnosing and treating gastroenteropancreatic tumors, including IDC-9 codes; Neuroendocrine tumors in children and young adults; Clinical presentations and their syndromes, including ICD-9 codes; Assays, including CPT codes; Profiles, including CPT codes; Dynamic challenge protocols, including CPT codes

Language: English

Material Type: Book; Online

Audience: Professional

Location: Kelowna Library; Surrey Library; Victoria Library; Abbotsford Library; Internet; Vancouver Library

Call Number: WI435 N494m 2009

Read Online

http://www.interscienceinstitute.com/docs/Neuroendocrine-Tumors-4th-Edition.pdf

Copies

c.1 BC Cancer Agency ARHCC Library			Available
c.2 BC Cancer Agency ARHCC Library			Available
c.1 BC Cancer Agency KEL Library			Available
c.1 BC Cancer Agency SUR Library			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available
c.2 BC Cancer Agency VIC Library			Available

From cancer patient to cancer survivor : lost in transition

https://bccalibrary.andornot.com/en/permalink/catalog14486

Hewitt, Maria, Greenfield, Sheldon, Stovall, Ellen. Washington, DC: National Academies Press , 2005.

Audience: Patient or Public

Call Number: QZ266 F931 2005

Availability: 5 copies, 5 available

1 read online

Author: Hewitt, Maria; Greenfield, Sheldon; Stovall, Ellen

Corporate Author: National Cancer Policy Board (U.S.). Committee on Cancer Survivorship : Improving Care and Quality of Life

Place of Publication: Washington, DC

Publisher: National Academies Press

Publication Date: 2005

Physical Description: xxv, 506 p. : ill. ; 24 cm.

Subjects: Neoplasms - psychology; Neoplasms - therapy; Continuity of Patient Care; Quality of Health Care; Survival Rate; Survivors; United States

ISBN: 0309095956

Language: English

Material Type: Book; Online

Audience: Patient or Public

Location: Vancouver Library; Vancouver Cancer Info Ctr; Victoria Library; Abbotsford Cancer Info Ctr; Kelowna Library; Internet

Call Number: QZ266 F931 2005

Website Notes: Downloadable PDF available from website.

Read Online

http://www.nap.edu/catalog/11468/from-cancer-patient-to-cancer-survivor-lost-in-transition

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency KEL Library			Available
c.1 BC Cancer Agency VAN Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available

Living with cancer : a resource to support First Nations people in BC on their cancer journey

https://bccalibrary.andornot.com/en/permalink/catalog125267

First Nations Health Authority, BC Cancer Agency. [West Vancouver, BC]: First Nations Health Authority , [2023?].

Audience: Patient or Public

Call Number: QZ201 F527 2023

Availability: 8 copies, 8 available

1 read online

Corporate Author: First Nations Health Authority; BC Cancer Agency

Place of Publication: [West Vancouver, BC]

Publisher: First Nations Health Authority

Publication Date: [2023?]

Physical Description: 67 p. : col. ill. ; 22 cm.

Subjects: Neoplasms - psychology; Neoplasms - therapy; Neoplasms - rehabilitation; Health Services, Indigenous; Patient Navigation; Self Care; Social Support; Culturally Competent Care; Medicine, Traditional; Personal Narratives; First Nations; Patient Education Handout

Notes: "This booklet is based on an earlier publication Living with Cancer--Everyone Deserves Support...The stories in this book were shared at Telling Our Stories Conference held in Prince George, BC in June 2016"

Language: English

Material Type: Book; Online

Status: Processing

Audience: Patient or Public

Location: Vancouver Library; Abbotsford Cancer Info Ctr; Kelowna Cancer Info Ctr; Prince George Cancer Info Ctr; Victoria Cancer Info Ctr; Internet

Call Number: QZ201 F527 2023

Read Online

https://www.fnha.ca/Documents/FNHA-Living-with-Cancer-Booklet.pdf

Copies

c.1 BC Cancer Agency VIC Cancer Info Ctr			Available
c.2 BC Cancer Agency VIC Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.2 BC Cancer Agency VAN Library			Available
c.3 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency PG Cancer Info Ctr			Available
c.1 BC Cancer Agency KEL Cancer Info Ctr			Available

Patient-centered communication in cancer care : promoting healing and reducing suffering

https://bccalibrary.andornot.com/en/permalink/catalog16503

Epstein, Ronald M, Street, Richard L. [Bethesda, MD]: National Cancer Institute , 2007.

Audience: Professional

Call Number: QZ266 E64 2007

Availability: 1 copy, 1 available

2 read online

Author: Epstein, Ronald M; Street, Richard L

Place of Publication: [Bethesda, MD]

Publisher: National Cancer Institute

Publication Date: 2007

Physical Description: xiii, 203 p. : ill. ; 28 cm.

Series: NIH publication # 07-6225

Subjects: Neoplasms - psychology; Medical Oncology; Patient-Centered Care; Oncology Nursing; Neoplasms - therapy; Counseling - methods; Professional-Patient Relations; Communication; Patient Education as Topic

Language: English

Material Type: Book; Online

Audience: Professional

Location: Victoria Library; Internet

Call Number: QZ266 E64 2007

Read Online

http://outcomes.cancer.gov/areas/pcc/communication/monograph.html

http://outcomes.cancer.gov/areas/pcc/communication/pcc_monograph.pdf

Copies

c.1 BC Cancer Agency VIC Library

Available

Patient experiences with ambulatory cancer care in British Columbia, 2005/06

https://bccalibrary.andornot.com/en/permalink/catalog17560

Watson, Diane E, Peterson, Sandra, Mooney, Dawn. [Vancouver, BC?]: UBC Centre for Health Services and Policy Research , 2007.

Audience: Professional

1 read online

Author: Watson, Diane E; Peterson, Sandra; Mooney, Dawn

Place of Publication: [Vancouver, BC?]

Publisher: UBC Centre for Health Services and Policy Research

Publication Date: 2007

Subjects: Neoplasms - psychology; Neoplasms - therapy; Ambulatory Care; Health Services Accessibility; Patient Satisfaction; Cancer Patients; Cancer Care Facilities; Health Care Surveys; Data Collection; British Columbia

ISBN: 1897085117

Language: English

Material Type: Book; Online

Audience: Professional

Location: Internet

Read Online

http://www.chspr.ubc.ca/sites/default/files/publication_files/chspr07-04.pdf

Establishing and enhancing services for childhood cancer survivors : long-term follow-up program resource guide

https://bccalibrary.andornot.com/en/permalink/catalog17734

Children's Onology Group Nursing Discipline Clinical Practice Subcommittee/Survivorship, Late Effects Committee. Arcadia, CA: CureSearch Children's Oncology Group , 2007.

Audience: Professional

1 read online

Alternate Title: Long-term follow-up program resource guide

Corporate Author: Children's Onology Group Nursing Discipline Clinical Practice Subcommittee/Survivorship; Late Effects Committee

Editor: Landier, Wendy

Place of Publication: Arcadia, CA

Publisher: CureSearch Children's Oncology Group

Publication Date: 2007

Subjects: Follow-up Studies; Long-Term Care - organization & administration; Neoplasms - therapy; Neoplasms - complications; Neoplasms - rehabilitation; Young Adult; Cancer Care Facilities; Adaptation, Psychological; Patient Advocacy; Survivors; Child

Language: English

Material Type: Online; Book

Audience: Professional

Location: Internet

Read Online

http://www.survivorshipguidelines.org/pdf/LTFUResourceGuide.pdf

Women-centered approach to cervical cancer screening : educational video for health professionals

https://bccalibrary.andornot.com/en/permalink/catalog20094

BC Cancer Agency, BC Women's Hospital + Health Centre. [Vancouver, BC?]: BC Cancer Agency. Cervical Cancer Screening Program | BCCA , 2009.

Audience: Professional

Call Number: WP480 B862w 2009

Availability: 3 copies, 3 available

Focus on screening; Focus on the cervix; Focus on the technique; Focus on exam; Focus on women

1 read online

Alternate Title: Women-centred approach to cervical cancer screening : educational video for health professionals; Woman-centered approach to cervical cancer screening : educational video for health professionals

Corporate Author: BC Cancer Agency; BC Women's Hospital + Health Centre

Place of Publication: [Vancouver, BC?]

Publisher: BC Cancer Agency. Cervical Cancer Screening Program; BCCA

Publication Date: 2009

Physical Description: 33 minutes

Subjects: Uterine Cervical Neoplasms - prevention & control; Uterine Cervical Neoplasms - diagnosis; Mass Screening; Vaginal Smears - methods; Health Promotion; Education, Medical, Continuing; British Columbia

Abstract: Focus on screening; Focus on the cervix; Focus on the technique; Focus on exam; Focus on women

Notes: For health professionals. Email screening@bccancer.bc.ca for access

Language: English

Material Type: Video; DVD; Online

Audience: Professional

Location: Vancouver Library AV Room; Kelowna Library; Abbotsford Library

Call Number: WP480 B862w 2009

Website Notes: To find information about how health professionals can access an online copy of the video, click the Resources tab, and scroll down to the Videos section.

Read Online

http://www.bccancer.bc.ca/screening/health-professionals/cervix

Copies

c.1 BC Cancer Agency ARHCC Library			Available
c.1 BC Cancer Agency KEL Library			Available
c.1 BC Cancer Agency VAN Library AV Room			Available

Patient safety and quality : an evidence-based handbook for nurses

https://bccalibrary.andornot.com/en/permalink/catalog16421

United States. Agency for Healthcare Research and Quality. Rockville, MD: Agency for Healthcare Research and Quality , 2008.

Audience: Professional

Call Number: WY100 P298h 2008

Availability: 3 copies, 3 available

v.1: Patient safety and quality; Evidence-based practice; Patient-centered care; v.2: Working conditions : work environment; Critical opportunities for patient safety and quality; v.3: Tools for improvement

1 read online

Corporate Author: United States. Agency for Healthcare Research and Quality

Editor: Hughes, Ronda G

Place of Publication: Rockville, MD

Publisher: Agency for Healthcare Research and Quality

Publication Date: 2008

Physical Description: 3v.

Series: AHRQ publication no. 08-0043

Subjects: Patient Care - standards; Patient Care - nursing; Nursing; Safety Management - standards; Health Facilities - organization & administration; Quality Assurance, Health Care; Medical Errors - prevention & control; Patient-Centered Care; Quality of Health Care; Occupational Health; Patient Care Management; Evidence-Based Medicine

Abstract: v.1: Patient safety and quality; Evidence-based practice; Patient-centered care; v.2: Working conditions : work environment; Critical opportunities for patient safety and quality; v.3: Tools for improvement

ISBN: 978587633539 (v.1); 978587633546 (v.2); 978587633553 (v.3)

Language: English

Material Type: Book; Online

Audience: Professional

Location: Vancouver Library; Internet

Call Number: WY100 P298h 2008

Read Online

http://www.ahrq.gov/qual/nurseshdbk/nurseshdbk.pdf

Copies

c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VAN Library			Available

Multicultural health care : a quality improvement guide

https://bccalibrary.andornot.com/en/permalink/catalog16573

National Committee for Quality Assurance (NCQA), Eli Lilly and Company. Indianapolis, IN: Eli Lilly and Company , 2007.

Audience: Professional

2 read online

Corporate Author: National Committee for Quality Assurance (NCQA); Eli Lilly and Company

Place of Publication: Indianapolis, IN

Publisher: Eli Lilly and Company

Publication Date: 2007

Subjects: Cross-Cultural Comparison; Delivery of Health Care; Patient-Centered Care; Cultural Diversity; Ethnic Groups; Professional-Patient Relations; Quality Assurance, Health Care

Language: English

Material Type: Book; Online

Audience: Professional

Location: Internet

Read Online

http://www.ncqa.org/Portals/0/HEDISQM/CLAS/CLAS_toolkit.pdf

http://www.ncqa.org/tabid/676/Default.aspx

What to expect : a patient's guide to the BC Cancer Agency, Vancouver Island

https://bccalibrary.andornot.com/en/permalink/catalog18108

BC Cancer Agency. Vancouver Island Centre. [Victoria, BC?]: BC Cancer Agency. Vancouver Island Centre | Cedarwood Productions Inc. , 2008.

Audience: Patient or Public

Call Number: QZ24 B863v 2008

Availability: 1 copy, 1 available

1 read online

Alternate Title: Your first visit; A new patient guide to the BC Cancer Agency

Corporate Author: BC Cancer Agency. Vancouver Island Centre

Place of Publication: [Victoria, BC?]

Publisher: BC Cancer Agency. Vancouver Island Centre; Cedarwood Productions Inc.

Publication Date: 2008

Physical Description: 1/2 inch : colour ; 20 minutes

Subjects: BC Cancer Agency, Vancouver Island Cancer Centre; Cancer Care Facilities; British Columbia; Patient Education Handout; Popular Work

Language: English

Material Type: Video; Online

Audience: Patient or Public

Location: Internet

Call Number: QZ24 B863v 2008

Read Online

http://learn.phsa.ca/bcca/patientvisit/VIC_new%20patient_flv_loader.html

Copies

c.1 BC Cancer Agency VAN Library Archives

Available

What to expect : a patient's guide to the BC Cancer Agency Vancouver Island Centre

https://bccalibrary.andornot.com/en/permalink/catalog17573

BC Cancer Agency. Vancouver Island Centre. [Victoria, BC?]: BC Cancer Agency. Vancouver Island Centre | Cedarwood Productions Inc. , 2008.

Audience: Patient or Public

Call Number: QZ24 B863v 2008

Availability: 4 copies, 4 available

1 read online

Alternate Title: Your first visit

Corporate Author: BC Cancer Agency. Vancouver Island Centre

Place of Publication: [Victoria, BC?]

Publisher: BC Cancer Agency. Vancouver Island Centre; Cedarwood Productions Inc.

Publication Date: 2008

Physical Description: 20 minutes

Subjects: BC Cancer Agency, Vancouver Island Cancer Centre; Cancer Care Facilities; British Columbia; Patient Education Handout; Popular Work

Language: English

Material Type: Video; DVD; Online

Audience: Patient or Public

Location: Vancouver Library; Internet; Victoria Library

Call Number: QZ24 B863v 2008

Read Online

http://learn.phsa.ca/bcca/patientvisit/VIC_new%20patient_flv_loader.html

Copies

c.1 BC Cancer Agency VAN Library Archives			Available
c.1 BC Cancer Agency VAN Library			Available
c.2 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available

Lung cancer patient education forum 2008 : Cantonese presentations

https://bccalibrary.andornot.com/en/permalink/catalog18188

Kwan, Susan, Yu, Simon, Chan, Theresa, Chung, Michael, Kwong, Sandy, Akrigg, Helena, Sekhon, Satnam. [Vancouver, BC?]: BC Cancer Agency. Multi-Media Services , 2008.

Audience: Patient or Public

Call Number: WF658 L964b 2008

Availability: 5 copies, 5 available

Overview of lung cancer by Dr. Susan Kwan; Radiotherapy and chemotherapy options by Dr. Simon Yu; Research in lung cancer by Dr. Theresa Chan; Traditional Chinese medicine by Dr. Michael Chung; Patient and family counseling and support by Sandy Kwong; Symptom management by Helena Akrigg; Nutrition …

7 read online

Alternate Title: Lung cancer patient education forum November 8, 2008

Author: Kwan, Susan; Yu, Simon; Chan, Theresa; Chung, Michael; Kwong, Sandy; Akrigg, Helena; Sekhon, Satnam

Corporate Author: BC Cancer Agency

Place of Publication: [Vancouver, BC?]

Publisher: BC Cancer Agency. Multi-Media Services

Publication Date: 2008

Physical Description: 120 minutes

Subjects: Lung Neoplasms - therapy; Patient Education; Popular Work

Abstract: Overview of lung cancer by Dr. Susan Kwan; Radiotherapy and chemotherapy options by Dr. Simon Yu; Research in lung cancer by Dr. Theresa Chan; Traditional Chinese medicine by Dr. Michael Chung; Patient and family counseling and support by Sandy Kwong; Symptom management by Helena Akrigg; Nutrition by Satnam Sekhon

Language: Chinese-Cantonese; English

Material Type: Video; DVD; Online

Audience: Patient or Public

Location: Vancouver Library; Abbotsford Cancer Info Ctr; Internet

Call Number: WF658 L964b 2008

Read Online

http://learn.phsa.ca/bcca/cantoneselung/sk/SK_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/sy/Sy_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/tc/tc_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/mc/mc_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/skwo/SandyK_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/ha/ha_flv_loader.html

http://learn.phsa.ca/bcca/cantoneselung/ss/Ss_flv_loader.html

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.2 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.2 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VAN Library Archives			Available

Working it out : your employment rights as a cancer survivor

https://bccalibrary.andornot.com/en/permalink/catalog15198

Hoffman, Barbara. Silver Spring, Md.: National Coalition for Cancer Survivorship , 2008.

Audience: Patient or Public

1 read online

Author: Hoffman, Barbara

Place of Publication: Silver Spring, Md.

Publisher: National Coalition for Cancer Survivorship

Publication Date: 2008

Subjects: Neoplasms - economics; Employment; Work; Civil Rights; Patient Advocacy; United States

Language: English

Material Type: Pamphlet; Online

Audience: Patient or Public

Location: Internet

Read Online

http://www.canceradvocacy.org/wp-content/uploads/2013/01/Working_It_Out.pdf

Best practices for engagement : tip sheets

https://bccalibrary.andornot.com/en/permalink/catalog122442

BC Cancer, Patient & Family Engagement. [Vancouver, BC?]: BC Cancer Agency , 2020.

Audience: Professional

Contents:; Best Practices for Successful Engagement -- Diversity in Patient Engagement -- Engagement Methods -- How to Request Patient and Family Partners -- Matching Partners -- Planning Engagement -- Presenting With Patient Partners -- Reimbursing Partners.

1 read online

Alternate Title: Patient experience program : best practices for engagement

Corporate Author: BC Cancer, Patient & Family Engagement

Place of Publication: [Vancouver, BC?]

Publisher: BC Cancer Agency

Publication Date: 2020

Subjects: Culturally Competent Care; Cultural Diversity; Patient Participation - methods; Decision Making; Caregivers; Professional - Patient Relations; Professional - Family Relations

Abstract: Contents:; Best Practices for Successful Engagement -- Diversity in Patient Engagement -- Engagement Methods -- How to Request Patient and Family Partners -- Matching Partners -- Planning Engagement -- Presenting With Patient Partners -- Reimbursing Partners.

Language: English

Material Type: Online

Audience: Professional

Location: Internet

Website Notes: Tip sheets in PDF format and more patient and family engagement resources available at link

Read Online

http://2pod.phsa.ca/quality-safety/patient/engagement/Pages/default.aspx

When children die : improving palliative and end-of-life care for children and their families

https://bccalibrary.andornot.com/en/permalink/catalog16633

Institute of Medicine (U.S.). Committee on Palliative and End-of-Life Care for Children and Their Families. Washington, DC: Institute of Medicine, National Academies Press , 2003.