Corporate Author

International Agency for Research on Cancer

Place of Publication

Lyon, France

Publication Date

2008

Physical Description

International Agency for Research on Cancer

Series

IARC working group reports 4

Subjects

Neoplasms

Biomedical Research - standards

Ethics, Research

Research Design

Guideline

ISBN

9789283224457

Language

English

Material Type

Book

Online

Audience

Professional

Location

Internet

Corporate Author

Council for International Organizations of Medical Sciences (CIOMS)

World Health Organization (WHO)

Place of Publication

Geneva

Publisher

CIOMS

Publication Date

2009

Physical Description

128 p. ; 24 cm.

Subjects

Epidemiological Methods

Ethics, Research

Helsinki Declaration

Research Subjects

Guideline

Guidelines as Topic

ISBN

929036081X

Language

English

Material Type

Book

Audience

Professional

Location

Vancouver Library

Call Number

WA950 I61 2009

Copies

Author

Beer, Tomasz M

Axmaker, Larry

Place of Publication

New York, NY

Publisher

DiaMedica Publishing

Publication Date

2012

Physical Description

xxvi, 166 p. : ill. ; 23 cm.

Subjects

Neoplasms - therapy

Clinical Trials as Topic

Decision Making

Antineoplastic Protocols

Therapies, Investigational

Biomedical Research

United States

ISBN

9780982321973

Language

English

Material Type

Book

Audience

Patient or Public

Location

Vancouver Library

Vancouver Cancer Info Ctr

Kelowna Cancer Info Ctr

Victoria Cancer Info Ctr

Abbotsford Cancer Info Ctr

Prince George Cancer Info Ctr

Call Number

QZ267 B415 2012

Copies

Editor

Bassil, Kate

Zabkiewicz, Denise

Place of Publication

Don Mills, ON

Publisher

Oxford University Press

Publication Date

2014

Physical Description

xiii, 298 p. : ill. ; 23 cm.

Subjects

Biomedical Research - methods

Ethics, Research

Research Design

Canada

ISBN

9780195447163

Language

English

Material Type

Book

Audience

Professional

Location

Kelowna Library

Victoria Library

Call Number

W20.5 H434 2014

Copies

Editor

Emanuel, Ezekiel J

Place of Publication

New York, NY

Publisher

Oxford University Press

Publication Date

2008

Physical Description

xx, 827 p. : ill. ; 29 cm.

Subjects

Human Experimentation - ethics

Ethics, Research

Ethics Committees, Research

Research Subjects - legislation & jurisprudence

Abstract

I: Selected history of research with humans

Walter Reed and the yellow fever experiments by Susan E. Lederer

Nazi medical experiments by Paul J. Weindling

Imperial Japanese experiments in China by Takashi Tsuchiya

Randomized controlled trial of streptomycin by Alan Yoshioka

Salk polio vaccine field trial of 1954 by Marcia L. Meldrum

Jewish chronic disease hospital case by John D. Arras

Hepatitis experiments at the Willowbrook State School by Walter M. Robinson and Brandon T. Unruh

Tuskegee syphilis experiment by James H. Jones

HIV research by John Y. Killen Jr.

Gelsinger case by Robert Steinbrook II: Codes, declarations, and other ethical guidance for research with humans

Ethical framework for biomedical research by Ezekiel J. Emanuel, David Wendler and Christine Grady

Nuremberg code by George J. Annas and Michael A. Grodin

Declaration of Helsinki by Richard E. Ashcroft

Belmont report by Tom L. Beauchamp

Regulations for the protection of humans in research in the United States: The common rule by Joan P. Porter and Greg Koski

International ethical guidance rrom the Council for International Organizations of Medical Sciences by Juhana E. ldanpaan-Heikkila and Sev S. Fluss

Council of Europe by Peteris Zilgalvis

European Community directives on data protection and clinical trials by Deryck Beyleveld and Sebastian Sethe

National bioethics commissions and research ethics by Eric M. Meslin and Summer Johnson III. Context, purpose, and value of clinical research

Exploitation in clinical research by Alan Wertheimer

Nature, scope, and justification of Clinical Research : what Is research? Who Is a subject? by Robert J. Levine

Four paradigms of clinical research and research oversight by Ezekiel J. Emanuel and Christine Grady

Role of patient advocates and public representatives in research by Rebecca Dresser IV. Scientific design

Equipoise and randomization by Steven Joffe and Robert D. Truog

Ethics of placebo-controlled trials by Franklin G. Miller

Challenge experiments by Franklin G. Miller and Donald L. Rosenstein

Emergency research by Jason H. T. Karlawish

Research with biological samples by David Wendler

Genetic diagnostic, pedigree, and screening research by Eric T. Juengst and Aaron Goldenberg

Deception in clinical research by David Wendler and Franklin G. Miller

Epidemiology : observational studies on human populations by Douglas L. Weed and Robert E. McKeown

Behavioral and social science research by Felice J. Levine and Paula R. Skedsvold

Phase I Oncology research by Manish Agrawal and Ezekiel J. Emanuel

Surgical innovation and research by Grant R. Gillett V. Participant selection Sect. A. Fair Participant selection

What Is fair participant selection? by Leslie A. Meltzer and James F. Childress

Incentives for research participants by Neal Dickert and Christine Grady

Recruiting research participants by Franklin G. Miller

Sect. B. Special populations

Research involving women by Christine Grady and Colleen Denny

Research with ethnic and minority populations by Bernard Lo and Nesrin Garan

Research involving economically disadvantaged participants by Carol Levine

Research involving those at risk for impaired decision-making capacity by Donald L. Rosenstein and Franklin G. Miller

Research with children by Alan R. Fleischman and Lauren K. Collogan

Research with captive populations :prisoners, students, and soldiers by Valerie H. Bonham and Jonathan D. Moreno

Research with identifiable and targeted communities by Morris W. Foster and Richard R. Sharp

Research with healthy volunteers by Albert R. Jensen and Franklin G. Miller

Research with fetuses, embryos, and stem cells by Ronald M. Green VI. Risk-benefit assessments

Risk-benefit analysis and the net risks test by David Wendler and Franklin G. Miller

Assessing and comparing potential benefits and risks of harm by Nancy M. P. King and Larry R. Churchill

Risk-benefit assessment in pediatric research by Sumeeta Varma and David Wendler VII. Independent review and oversight

Origins and policies that govern institutional review boards by Charles R. McCarthy

Models of institutional review board function by Angela J. Bowen

Evaluating the effectiveness of institutional review boards by Marjorie A. Speers

Data and safety monitoring boards by Lawrence M. Friedman and Eleanor B. Schron

Food and drug administration and drug development : historic, scientific, and ethical considerations by Robert Temple and Sara F. Goldkind VIII. Informed consent

History of informed consent in clinical research by Erika Blacksher and Jonathan D. Moreno

Philosophical justifications of informed consent in research by Dan W. Brock

Legal and regulatory standards of informed consent in research by Alexander M. Capron

Therapeutic misconception by Paul S. Appelbaum and Charles W. Lidz

Empirical issues in informed consent for research by James H. Flory, David Wendler and Ezekiel J. Emanuel

Assent requirement in pediatric research by David Wendler IX. Respect for human research participants

Confidentiality by James G. Hodge Jr. and Lawrence O. Gostin

Liability and compensation for injury of research subjects by Wendy K. Mariner

Obligation to ensure access to beneficial treatments for research participants at the conclusion of clinical trials by James V. Lavery X. Multinational research

Appropriate ethical standards by Ruth Macklin

Benefits to host countries by Ezekiel J. Emanuel

Standard of care in multinational research by Soren Holm and John Harris

Responsiveness to host community health needs by Alex John London XI. Clinical investigator behavior

Conflict of interest in medical research : historical developments by Trudo Lemmens

Concept of conflicts of interest by Ezekiel J. Emanuel and Dennis F. Thompson

Empirical data on donflicts of interest by Lindsay A. Hampson, Justin E. Bekelman and Cary P. Gross

Industrialization of academic science and threats to scientific integrity by Eric G. Campbell and David Blumenthal

Fraud, fabrication, and falsification by David B. Resnik

Obligation to publish and disseminate results by Drummond Rennie.

ISBN

9780195168655

0195168658

Language

English

Material Type

Book

Audience

Professional

Location

Vancouver Library

Kelowna Library

Surrey Library

Victoria Library

Abbotsford Library

Call Number

W20.55 H9 O98 2008

Copies

Editor

Emanuel, Ezekiel J

Place of Publication

Baltimore, md.

Publisher

Johns Hopkins University Press

Publication Date

2003

Physical Description

xxxv, 490 p. ; 28 cm.

Subjects

Ethics, Research

Research Subjects

ISBN

0801878136

Language

English

Material Type

Book

Audience

Professional

Location

Vancouver Library

Victoria Library

Kelowna Library

Call Number

W20.5 E84 2003

Copies

Corporate Author

Pfizer

Place of Publication

Kirkland, QC

Publisher

Pfizer Inc.

Publication Date

2009?

Subjects

Clinical Trials as Topic

Neoplasms - drug therapy

Patient Education as Topic

Decision Making

Popular Work

Abstract

Introduction

Importance, benefits and risks of clinical trials

Four phases of clinical trials

Your role as a participant

Safety aspects of a clinical trial

Conclusion

Language

English

Material Type

Video

DVD

Audience

Patient or Public

Location

Vancouver Library

Call Number

HA29 A244 2009

Copies

Alternate Title

Ethical conduct for research involving humans : TCPS2

Corporate Author

Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, Social Sciences and Humanities Research Council of Canada

Edition

2nd ed.

Place of Publication

[Ottawa, ON]

Publisher

Interagency Secretariat on Research Ethics

Publication Date

2010

Subjects

Ethics, Research

Research

Research Subjects

Ethics Committees

Ethical Review

Human Experimentation - ethics

Informed Consent

Public Policy

Canada

ISBN

9781100172378

Language

English

Material Type

Book

Online

Audience

Professional

Location

Internet

Website Notes

2nd URL for the most recent information on amendments

Alternate Title

Guideline for the management of clinically localized prostate cancer : 2007 update

Corporate Author

American Urological Association Education and Research, Inc.

Publisher

American Urological Association Education and Research, Inc.

Publication Date

2007

Subjects

Prostatic Neoplasms - therapy

Prostatic Neoplasms - complications

Decision Making

Practice Guideline

Randomized Controlled Trials as Topic

Language

English

Material Type

Book

Online

Audience

Professional

Location

Internet

Author

Jonsen, Albert R

Siegler, Mark

Winslade, William J

Edition

6th ed.

Place of Publication

New York, NY

Publisher

McGraw-Hill, Inc.

Publication Date

2006

Series

R2 Library

Subjects

Ethics, Clinical

Bioethical Issues

Patient Participation

Decision Making

Ethical Analysis - methods

Quality of Life

ISBN

0071441999

Language

English

Material Type

Book

Ebook

Audience

Professional

Location

Internet

Kelowna Library

Call Number

WB60 J81 2006

Website Notes

This R2 title is licensed for one BC Cancer staff user at a time only. Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted.

Copies

Author

Mulay, Marilyn

Place of Publication

Sudsbury, Ma.

Publisher

Jones and Bartlett Publishers

Publication Date

2002

Physical Description

xv, 120 p. : ill. ; 23 cm.

Subjects

Clinical Trials

Decision Making

Patient Education

Popular Work

ISBN

0763716901

Language

English

Material Type

Book

Audience

Patient or Public

Location

Vancouver Library

Victoria Cancer Info Ctr

Abbotsford Cancer Info Ctr

Call Number

QZ200 M954 2002

Copies

Corporate Author

Canadian Coalition for Global Health Research

Editor

Johnson, Nancy

Place of Publication

Wakefield, QC

Publisher

Canadian Coalition for Global Health Research

Publication Date

2015

Subjects

Ethics

Bioethics

Ethics, Medical

Ethics, Research

Global Health

Public Health

Healthcare Disparities

Community-Based Participatory Research

Health Services, Indigenous

Canada

Notes

Principle Investigator: Katrina Plamondon. Interior Health Authority.

Language

English

Material Type

Online

Report

Audience

Professional

Location

Internet

Editor

Faintuch, Joel

Faintuch, Salomao

Edition

1st ed.

Place of Publication

Cham, Switzerland

Publisher

Springer International Publishing AG

Publication Date

2022

Series

Proquest Ebook Central

Subjects

Ethics, Research

Scientific Misconduct

Fraud

ISBN

9783030996802

9783030996796

Language

English

Material Type

Ebook

Audience

Professional

Location

Internet

Website Notes

This Proquest title is licensed for ONE BC Cancer staff user at a time. If you are denied access while on a network computer, please try again later.

Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted.

Author

Oster, Nancy

Thomas, Lucy

Joseff, Darol

Place of Publication

Sebastopol, Ca.

Publisher

O'Reilly & Associates, Inc.

Publication Date

2000

Subjects

Internet

Decision Making

Evidence-Based Medicine

Clinical Trials

ISBN

1565924592

Language

English

Material Type

Book

Audience

Patient or Public

Location

Vancouver Library

Call Number

W50 O85 2000

Copies

Author

Gray, J.A. Muir

Kerr, David J

Place of Publication

Oxford, UK

Publisher

Offox Press

Publication Date

2013

Physical Description

xiv, 247 p. : ill. ; 22 cm.

Subjects

Neoplasms - therapy

Neoplasms - economics

Health Planning

Delivery of Health Care - economics

Cancer Care Facilities

Decision Making

Clinical Trials as Topic

Costs and Cost Analysis

Health Care Costs

Cost Savings

ISBN

9781904202158

1904202152

Language

English

Material Type

Book

Audience

Professional

Location

Vancouver Library

Call Number

QZ200 G779 2013

Copies

Editor

Rehmann-Sutter, Christoph

Gudat, Heike

Ohnsorge, Kathrin

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2015

Series

EBSCOhost eBook

Subjects

Right to Die - ethics

Suicide, Assisted - ethics

Euthanasia

Patient Participation

Attitude to Death

Palliative Care - psychology

Advance Care Planning

Terminal Care

Decision Making

Ethics, Clinical

Abstract

Table of Contents :

PART I: Introduction -- Why it is important to know about patients? wishes to die -- PART II: Research --Illness narratives, meaning making, and epistemic injustice in research at the end of life -- Expressed desire for hastened death in seven patients living with advanced cancer: a phenomenologic inquiry -- Expressed desire for hastened death: a phenomenologic inquiry? 10 years later -- Euthanasia (requests) after the implementation of the euthanasia law in Belgium in 2002. Results of empirical studies in Flanders, Belgium -- The journey to understanding the wish to hasten death -- The desire for hastened death in patients in palliative care -- Intentions, motivations, and social interactions regarding a wish to die -- Acting on a wish to die at the end of life: the Swiss situation -- Understanding older people?s wish to die -- Dialogue intermezzo: I -- PART III: Ethics -- Caring and killing in the clinic: the argument of self-determination -- Towards responsive knowing in matters of life and death -- Dealing with dilemmas around patients? wishes to die: moral case deliberation in a Dutch hospice -- End-of-life ethics from the perspectives of patients? wishes -- Dialogue intermezzo: II -- PART IV: Practice -- Issues of palliative medicine in end-of-life care -- Spirituality at the bedside: negotiating the meaning of dying -- Communication of wishes to die -- From understanding to patient-centred management: clinical pictures of a wish to die -- What does the wish to hasten death mean for the palliative patient? Clinical implications -- PART V: Conclusion -- Concluding dialogue.

ISBN

9780191023330

9780198713982

Language

English

Material Type

Ebook

Audience

Professional

Location

Internet

Website Notes

This EBSCO title is licensed for one BC Cancer staff user at a time only. Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted.

Editor

Fisher, Johnna

Edition

2nd ed.

Place of Publication

Don Mills, ON

Publisher

Oxford University Press

Publication Date

2013

Physical Description

xiv, 514 p. ; 26 cm.

Subjects

Bioethics

Ethics, Medical

Bioethical Issues

Ethics, Research

Canada

ISBN

9780195446883

Language

English

Material Type

Book

Audience

Professional

Location

Surrey Library

Call Number

W50 B615f 2013

Copies

Corporate Author

Canadian Agency for Drugs and Technologies in Health

Edition

4th ed.

Place of Publication

[Ottawa, ON]

Publisher

Canadian Agency for Drugs and Technologies in Health (CADTH)

Publication Date

2017

Physical Description

76 p. ; 28 cm.

Series

CADTH methods and guidelines

Subjects

Technology Assessment, Biomedical - economics

Technology Assessment, Biomedical - methods

Cost-Benefit Analysis

Decision Making

Guidelines

Canada

Notes

In April 2006 Canadian Coordinating Office for Health Technology Assessment (CCOHTA) changed to Canadian Agency for Drugs and Technologies in Health (CADTH)

Language

English

Material Type

Report

Online

Audience

Professional

Location

Vancouver Library

Internet

Call Number

W 82 G946 2017

Copies

Editor

Eden, Jill

Edition

prepublication copy : uncorrected proofs

Place of Publication

Washington, DC

Publisher

Institute of Medicine, National Academies Press

Publication Date

2011

Subjects

Review Literature as Topic

Meta-Analysis as Topic

Decision Making

Evidence-Based Medicine - methods

Comparative Effectiveness Research

Delivery of health Care - standards

Language

English

Material Type

Book

Online

Audience

Professional

Location

Internet

Alternate Title

How to successfully engage patients and families in building quality-improvement initiatives : 10 lesson learned from patient and family advisors

Corporate Author

Canadian Foundation for Healthcare Improvement (CFHI)

Publisher

Canadian Foundation for Healthcare Improvement (CFHI)

Publication Date

[2019]

Subjects

Patient Participation - methods

Community Participation - methods

Decision Making

Professional - Patient Relations

Professional - Family Relations

Language

English

Material Type

Online

Audience

Professional

Location

Internet