Search Results - BC Cancer Agency Library

Access to palliative care in Canada

https://bccalibrary.andornot.com/en/permalink/catalog121194

Canadian Institute for Health Information. [Ottawa, ON]: Canadian Institute for Health Information , 2018.

Audience: Professional

CIHI's report Access to Palliative Care in Canada provides baseline information on what we know about palliative care services in the last year of life, on whether Canadians have equitable and timely access to appropriate services and on gaps in this area of health care. - Website

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Corporate Author: Canadian Institute for Health Information

Place of Publication: [Ottawa, ON]

Publisher: Canadian Institute for Health Information

Publication Date: 2018

Subjects: Palliative Care; Delivery of Health Care; Community Health Planning; Caregivers; Canada

Abstract: CIHI's report Access to Palliative Care in Canada provides baseline information on what we know about palliative care services in the last year of life, on whether Canadians have equitable and timely access to appropriate services and on gaps in this area of health care. - Website

ISBN: 9781771097376

Language: English

Material Type: Report; Online

Audience: Professional

Location: Internet

Read Online

https://www.cihi.ca/en/access-data-and-reports/access-to-palliative-care-in-canada

https://www.cihi.ca/sites/default/files/document/access-palliative-care-2018-en-web.pdf

Androgen deprivation therapy : an essential guide for prostate cancer patients and their loved ones

https://bccalibrary.andornot.com/en/permalink/catalog120844

Wassersug, Richard J, Walker, Lauren M, Robinson, John W. New York, NY: Demos Health , 2018. 2nd ed.

Audience: Patient or Public

Call Number: WJ762 W322 2018

Availability: 10 copies, 10 available

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Author: Wassersug, Richard J; Walker, Lauren M; Robinson, John W

Edition: 2nd ed.

Place of Publication: New York, NY

Publisher: Demos Health

Publication Date: 2018

Physical Description: xxvi, 203 p. ; 26 cm.

Series: Proquest Ebook Central

Subjects: Prostatic Neoplasms - therapy; Prostatic Neoplasms, Castration-Resistant; Neoplasms - psychology; Androgen Antagonists - therapeutic use; Androgen Antagonists - adverse effects; Prostatic Neoplasms - diet therapy; Exercise Therapy; Sexual Partners; Family Relations; Adaptation, Psychological; Popular Work

Notes: Surrey CIC keep 2022 (F0002681, F0002507)

ISBN: 9780826183910; 0826183913; 9780826183927

Language: English

Material Type: Book; Ebook

Audience: Patient or Public

Location: Vancouver Library; Abbotsford Cancer Info Ctr; Kelowna Cancer Info Ctr; Prince George Cancer Info Ctr; Surrey Cancer Info Ctr; Vancouver Cancer Info Ctr; Victoria Cancer Info Ctr; Internet

Call Number: WJ762 W322 2018

Website Notes: This resource was purchased with a donation from the Order of the Eastern Star.; Patients and the public of BC and the Yukon can access this title by emailing library@bccancer.bc.ca or calling 1.888.675.8001 x 7000 (toll-free) to obtain a username and password.

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https://ebookcentral.proquest.com/lib/bccancer-ebooks/detail.action?docID=5401066

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c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency KEL Cancer Info Ctr			Available
c.2 BC Cancer Agency KEL Cancer Info Ctr Missing			Available
c.1 BC Cancer Agency SUR Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Cancer Info Ctr			Available
c.1 BC Cancer Agency VIC Cancer Info Ctr			Available
c.2 BC Cancer Agency VIC Cancer Info Ctr			Available
c.1 BC Cancer Agency PG Cancer Info Ctr			Available
c.2 BC Cancer Agency SUR Cancer Info Ctr			Available

Androgen deprivation therapy : an essential guide for prostate cancer patients and their loved ones

https://bccalibrary.andornot.com/en/permalink/catalog21728

Wassersug, Richard J, Walker, Lauren M, Robinson, John W. New York, NY: Demos Health , 2014.

Audience: Patient or Public

Call Number: WJ752 W322 2014

Availability: 4 copies, 4 available

1 read online

Author: Wassersug, Richard J; Walker, Lauren M; Robinson, John W

Place of Publication: New York, NY

Publisher: Demos Health

Publication Date: 2014

Physical Description: xxii, 153 p. ; 26 cm.

Series: Proquest Ebook Central; ebrary books for public

Subjects: Prostatic Neoplasms - therapy; Prostatic Neoplasms, Castration-Resistant; Neoplasms - psychology; Androgen Antagonists - therapeutic use; Sexual Partners; Family Relations; Adaptation, Psychological; Popular Work

ISBN: 9781936303663; 9781617052200

Language: English

Material Type: Book; Ebook

Audience: Patient or Public

Location: Vancouver Library; Vancouver Cancer Info Ctr; Abbotsford Cancer Info Ctr; Prince George Cancer Info Ctr; Internet

Call Number: WJ752 W322 2014

Website Notes: Patients and the public of BC and the Yukon can access this title by emailing library@bccancer.bc.ca or calling 1.888.675.8001 x 7000 (toll-free) to obtain a username and password.

Read Online

https://ebookcentral.proquest.com/lib/bccancer-ebooks/reader.action?docID=3007786

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.2 BC Cancer Agency VAN Cancer Info Ctr			Available

The Art and Science of Compassionate Care: a Practical Guide

https://bccalibrary.andornot.com/en/permalink/catalog124714

Cham, Switzerland: Springer International Publishing AG , c2023. 1st ed.

Audience: Professional

"This book provides a practical guide on the art and science of compassionate care in an era of healthcare crisis due to the COVID-19 pandemic that is inflicting long-lasting financial and psychosocial trauma on an unprecedented scale. A new approach to compassionate care is presented based on the …

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Editor: Samoutis, Andreas; Samoutis, George; Stylianou, Neophytos; Anastasiou, Andreas; Lionis, Christos

Edition: 1st ed.

Place of Publication: Cham, Switzerland

Publisher: Springer International Publishing AG

Publication Date: c2023

Series: Proquest Ebook Central

Subjects: Delivery of Health Care; COVID-19; Empathy; Evidence-Based Medicine; Global Health; Psychology, Positive; Spirituality

Abstract: "This book provides a practical guide on the art and science of compassionate care in an era of healthcare crisis due to the COVID-19 pandemic that is inflicting long-lasting financial and psychosocial trauma on an unprecedented scale. A new approach to compassionate care is presented based on the overarching concepts of empathy, person and family centeredness, therapeutic relationship, kindness, gratitude, spirituality, communication skills, shared decision making, positive psychology, adversity-activated development, self-care, compassion fatigue, spirituality which are more than ever critical in successfully managing the pandemic adversity in front of us. This book draws on clinical experience, educational activities and evidence-based knowledge from academic physicians (primary, secondary and tertiary care), nurses, psychologists, health economists, healthcare managers, health policymakers, medical professionals students and patients. It provides skills and knowledge that can be implemented in daily clinical practice based on all levels of healthcare on a whole-person approach. An array of clinical cases, patient journeys, published evidence and practical experience is combined to deliver in a practical way unique guidance and advice. The target audience is all healthcare professionals, health policymakers, healthcare managers and patient associations. This approach of Compassionate Care is of great importance and can save lives and money in these unprecedented times of global healthcare care system challenges." --publisher

Notes: This Proquest title is licensed for ONE BC Cancer staff user at a time. If you are denied access while on a network computer, please try again later.; Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted

ISBN: 9783031215230

Language: English

Material Type: Ebook

Audience: Professional

Location: Internet

Website Notes: This title is licensed for one user at a time on BC Cancer-network computers. If you are denied access while on a network computer, try again later.

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https://login.bccancer.idm.oclc.org/login?url=https://ebookcentral.proquest.com/lib/bccancer-ebooks/detail.action?docID=7206737

Bearing witness : stories of women living with ovarian cancer

https://bccalibrary.andornot.com/en/permalink/catalog19591

Waterloo, ON: Wilfrid Laurier University Press , 2009.

Audience: Patient or Public

Call Number: WP322 B369 2009

Availability: 4 copies, 4 available

1 read online

Alternate Title: Bearing witness : living with ovarian cancer

Editor: Carter, Kathryn; Elit, Laurie

Place of Publication: Waterloo, ON

Publisher: Wilfrid Laurier University Press

Publication Date: 2009

Physical Description: vii, 91 p. ; 23 cm.

Series: Proquest Ebook Central; Life writing series; ebrary books for public

Subjects: Ovarian Neoplasms; Social Support; Recurrence; Adaptation, Psychological; Personal Narratives; Popular Work

ISBN: 9781554580552; 9781554581634

Language: English

Material Type: Book; Ebook

Audience: Patient or Public

Location: Vancouver Library; Abbotsford Cancer Info Ctr; Prince George Cancer Info Ctr; Victoria Cancer Info Ctr; Internet

Call Number: WP322 B369 2009

Website Notes: Patients and the public of BC and the Yukon can access this title by emailing library@bccancer.bc.ca or calling 1.888.675.8001 x 7000 (toll-free) to obtain a username and password.

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https://ebookcentral.proquest.com/lib/bccancer-ebooks/reader.action?docID=3268517

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Cancer Info Ctr			Available
c.1 BC Cancer Agency PG Cancer Info Ctr			Available

Building bridges, strengthening care : BC Cancer & primary care strategy session.

https://bccalibrary.andornot.com/en/permalink/catalog121664

Clelland, Cathy. BC Cancer Agency , 2018.

Audience: Professional

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Alternate Title: Building bridges, strengthening care

Author: Clelland, Cathy

Corporate Author: Family Practice Oncology Network (FPON); Provincial Primary Care Program (PPCP)

Publisher: BC Cancer Agency

Publication Date: 2018

Subjects: Medical Oncology; Regional health planning; Delivery of Health Care; British Columbia

Notes: Report from October 19, 2018

Language: English

Material Type: Report

Audience: Professional

Location: VC Library Archives; Internet

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http://www.bccancer.bc.ca/family-oncology-network-site/Documents/Building%20Bridges%20-%20Strengthening%20Care%20Report%20from%20Oct%2019-2018-Final.pdf

Cancer care for adolescents and young adults

https://bccalibrary.andornot.com/en/permalink/catalog15137

Oxford, UK: Blackwell Publishing , 2008.

Audience: Professional

Call Number: QZ275 C215k 2008

Availability: 3 copies, 3 available

Cancer in adolescence : incidence and policy issues by Jeremy Whelan and Lorna Fern; The physical and emotional impact of cancer in adolescents and young adults by Daniel Kelly; The impact of cancer on parents and families by Anne Grinyer; The impact of adolescent cancer on healthcare professionals…

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Editor: Kelly, Daniel; Gibson, Faith

Place of Publication: Oxford, UK

Publisher: Blackwell Publishing

Publication Date: 2008

Physical Description: xiv, 254 p. : ill. ; 25 cm.

Series: Proquest Ebook Central

Subjects: Neoplasms - psychology; Adolescent Psychology; Quality of Life; Survivors; Delivery of Health Care; Social Support; Adolescent

Abstract: Cancer in adolescence : incidence and policy issues by Jeremy Whelan and Lorna Fern; The physical and emotional impact of cancer in adolescents and young adults by Daniel Kelly; The impact of cancer on parents and families by Anne Grinyer; The impact of adolescent cancer on healthcare professionals by Susie Pearce; Supportive care for adolescents and young adults during cancer treatment by Neale Hanvey and Alison Finch; Getting on with life during treatment by Roberta Woodgate; End of treatment issues: looking to the future by Nelia Langeveld and Julia Arbuckle; Long-terms effects of cancer treatment by Gill Levitt and Deborah Eshelman; Palliation and end of life care issues by Maggie Bisset, Sue Hutton, and Daniel Kelly; Building a culture of participation: young people?s involvement in research by Faith Gibson; Developing an integrated approach to the care of adolescents and young adults with cancer by Daniel Kelly and Faith Gibson

ISBN: 9780470698013; 9781405130943

Language: English

Material Type: Book; Ebook

Audience: Professional

Location: Vancouver Library; Abbotsford Library; Victoria Library; Internet

Call Number: QZ275 C215k 2008

Website Notes: This Proquest title is licensed for ONE BC Cancer staff user at a time. If you are denied access while on a network computer, please try again later.; Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted.

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c.1 BC Cancer Agency ARHCC Library			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available

Cancer control 2015 : cancer care in emerging heath systems

https://bccalibrary.andornot.com/en/permalink/catalog113689

International Network for Cancer Treatment and Research. Suffolk, UK: Global Health Dynamics | International Network for Cancer Treatment and Research , 2015.

Audience: Professional

Call Number: QZ200 C2125 2015

Availability: 2 copies, 2 available

1 read online

Corporate Author: International Network for Cancer Treatment and Research

Editor: Magrath, Ian

Place of Publication: Suffolk, UK

Publisher: Global Health Dynamics; International Network for Cancer Treatment and Research

Publication Date: 2015

Physical Description: 152 p. : ill. ; 30 cm.

Series: Cancer control

Subjects: Neoplasms - epidemiology; Neoplasms - prevention & control; Neoplasms - therapy; Delivery of Health Care; Health Planning; Health Promotion; Health Policy; Health Services Accessibility; Health Care Facilities, Manpower, and Services; Population Surveillance; Developing Countries; World Health

ISBN: 9780957607248

Language: English

Material Type: Book; Online

Audience: Professional

Location: Vancouver Library; Victoria Library; Abbotsford Library; Internet

Call Number: QZ200 C2125 2015

Read Online

http://www.cancercontrol.info

Copies

c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Library			Available

Cancer control 2016 : cancer care in emerging heath systems

https://bccalibrary.andornot.com/en/permalink/catalog119961

International Network for Cancer Treatment and Research. Suffolk, UK: Global Health Dynamics | International Network for Cancer Treatment and Research , 2016.

Audience: Professional

Call Number: QZ200 C2125 2016

Availability: 2 copies, 2 available

1 read online

Corporate Author: International Network for Cancer Treatment and Research

Editor: Magrath, Ian

Place of Publication: Suffolk, UK

Publisher: Global Health Dynamics; International Network for Cancer Treatment and Research

Publication Date: 2016

Physical Description: 112 p. : ill. ; 30 cm.

Series: Cancer control

Subjects: Neoplasms - epidemiology; Neoplasms - prevention & control; Neoplasms - therapy; Delivery of Health Care; Health Planning; Health Promotion; Health Policy; Health Services Accessibility; Health Care Facilities, Manpower, and Services; Population Surveillance; Developing Countries; World Health

ISBN: 9780957607262

Language: English

Material Type: Book; Online

Audience: Professional

Location: Vancouver Library; Abbotsford Library; Internet

Call Number: QZ200 C2125 2016

Read Online

http://www.cancercontrol.info

Copies

c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency ARHCC Library			Available

Cancer in our family : helping children cope with a parent's illness

https://bccalibrary.andornot.com/en/permalink/catalog19929

Heiney, Sue P, Hermann, Joan F. Atlanta, GA: American Cancer Society , 2013. 2nd ed.

Audience: Patient or Public

Call Number: QZ201 H468 2013

Availability: 6 copies, 6 available

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Continues / Continued By: Cancer in the family

Alternate Title: Cancer in our family; Cancer in the family; Helping children cope with a parent's illness

Author: Heiney, Sue P; Hermann, Joan F

Edition: 2nd ed.

Place of Publication: Atlanta, GA

Publisher: American Cancer Society

Publication Date: 2013

Physical Description: xxiv, 231 p. : ill. ; 23 cm.

Series: EBSCOhost eBook

Subjects: Neoplasms - psychology; Family Relations; Parent-Child Relations; Child; Adolescent; Communication; Adaptation, Psychological; Social Support

ISBN: 9780944235959; 0944235956; 9781604432206

Language: English

Material Type: Book; Ebook

Audience: Patient or Public

Location: Vancouver Library; Vancouver Cancer Info Ctr; Kelowna Cancer Info Ctr; Victoria Cancer Info Ctr; Abbotsford Cancer Info Ctr; Prince George Cancer Info Ctr; Internet

Call Number: QZ201 H468 2013

Website Notes: Patients and the public of BC and the Yukon can access this title by emailing library@bccancer.bc.ca to obtain a username and password from the Library.

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http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=645715

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c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency PG Cancer Info Ctr			Available
c.1 BC Cancer Agency KEL Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.1 BC Cancer Agency VIC Cancer Info Ctr			Available

Cancer survivorship : next steps for patients and their families

https://bccalibrary.andornot.com/en/permalink/catalog20164

American Society of Clinical Oncology. Alexandria, VA: American Society of Clinical Oncology , 2011.

Audience: Patient or Public

Call Number: QZ200 A816 2011

Availability: 6 copies, 6 available

2 read online

Corporate Author: American Society of Clinical Oncology

Place of Publication: Alexandria, VA

Publisher: American Society of Clinical Oncology

Publication Date: 2011

Physical Description: 26 p. : ill. ; 23 cm.

Subjects: Neoplasms - psychology; Neoplasms - rehabilitation; Quality of Life; Survivors; Adaptation, Psychological; Neoplasms - complications; Follow-up Studies; Social Support

Language: English

Material Type: Booklet; Online

Audience: Patient or Public

Location: Vancouver Library; Kelowna Cancer Info Ctr; Abbotsford Cancer Info Ctr; Internet

Call Number: QZ200 A816 2011

Read Online

http://www.cancer.net/patient/Survivorship

http://www.cancer.net/sites/cancer.net/files/vignette/Cancer_Survivorship.pdf

Copies

c.1 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.2 BC Cancer Agency ARHCC Cancer Info Ctr			Available
c.1 BC Cancer Agency KEL Cancer Info Ctr			Available
c.2 BC Cancer Agency KEL Cancer Info Ctr			Available
c.1 BC Cancer Agency VAN Library			Available
c.2 BC Cancer Agency VAN Library			Available

Cancer Workforce Scoping Study : a report from the front lines of Canada's cancer control workforce : technical report

https://bccalibrary.andornot.com/en/permalink/catalog19974

Gaudette, Leslie, Da Prat, Christine. [Toronto, ON]: Canadian Partnership Against Cancer , 2010.

Audience: Professional

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Author: Gaudette, Leslie; Da Prat, Christine

Corporate Author: Canadian Partnership Against Cancer

Place of Publication: [Toronto, ON]

Publisher: Canadian Partnership Against Cancer

Publication Date: 2010

Subjects: Cancer Care Facilities - manpower; Health Planning; Health Policy; Health Services Needs and Demand; Health Manpower - trends; Health Personnel; Delivery of Health Care; Health Services Accessibility; Canada

Notes: March 2010

Language: English

Material Type: Report; Online

Audience: Professional

Location: Internet

Read Online

http://www.cancerview.ca/idc/groups/public/documents/webcontent/hhr_cwss_technical_report.pdf

Caring for the caregiver : support for cancer caregivers

https://bccalibrary.andornot.com/en/permalink/catalog18369

National Cancer Institute. [Bethesda, MD]: National Cancer Institute , 2007.

Audience: Patient or Public

Call Number: QZ200 N278c 2007

Availability: 1 copy, 1 available

2 read online

Corporate Author: National Cancer Institute

Place of Publication: [Bethesda, MD]

Publisher: National Cancer Institute

Publication Date: 2007

Physical Description: 15 p. : ill. ; 22 cm.

Subjects: Neoplasms - psychology; Neoplasms; Caregivers - psychology; Adaptation, Psychological; Social Support; Popular Work

Language: English

Material Type: Booklet; Handout; Online

Audience: Patient or Public

Location: Kelowna Cancer Info Ctr; Internet

Call Number: QZ200 N278c 2007

Read Online

http://www.cancer.gov/cancertopics/caring-for-the-caregiver

http://www.cancer.gov/cancertopics/caring-for-the-caregiver.pdf

Copies

c.1 BC Cancer Agency KEL Cancer Info Ctr

Available

Communication and care coordination for the palliative care team : a handbook for building and maintaining optimal teams

https://bccalibrary.andornot.com/en/permalink/catalog122443

Imes, Rebecca S., Omilion-Hodges, Leah M., Hester, Jennifer D. B. New York, NY: Springer Publishing Company, LLC , [2021].

Audience: Professional

Contents:; Why We Need to Talk about Teams and Communication in Palliative Care -- Who Are the Players? Exploring the Types of Palliative Care Providers -- Formation and Maintenance of High Performing Palliative Care Teams -- Leading Palliative Care Teams -- Interdisciplinary Palliative Care Team M…

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Author: Imes, Rebecca S.; Omilion-Hodges, Leah M.; Hester, Jennifer D. B.

Place of Publication: New York, NY

Publisher: Springer Publishing Company, LLC

Publication Date: [2021]

Series: R2 Library

Subjects: Palliative Care; Patient Care Team; Communication; Interprofessional Relations; Patient-Centered Care

Abstract: Contents:; Why We Need to Talk about Teams and Communication in Palliative Care -- Who Are the Players? Exploring the Types of Palliative Care Providers -- Formation and Maintenance of High Performing Palliative Care Teams -- Leading Palliative Care Teams -- Interdisciplinary Palliative Care Team Meetings -- Occupational Culture : Understanding the Role and Stigma of Palliative Care -- Self-care and Team-care in Emotional Labor-Intensive Positions.

ISBN: 0826158056; 9780826158055; 9780826158062

Language: English

Material Type: Ebook

Audience: Professional

Location: Internet

Website Notes: This R2 title is licensed for one BC Cancer staff user at a time only. Authentication via HealthBC sign in required. Use your BC Cancer staff username and ID when prompted.

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https://login.bccancer.idm.oclc.org/login?url=https://www.r2library.com/Resource/Title/0826158056

Decisions, decisions : family doctors as gatekeepers to prescription drugs and diagnostic imaging in Canada

https://bccalibrary.andornot.com/en/permalink/catalog19738

Health Council of Canada. [Toronto, ON]: Health Council of Canada , 2010.

Audience: Patient or Public

Call Number: W84 D294 2010

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Corporate Author: Health Council of Canada

Place of Publication: [Toronto, ON]

Publisher: Health Council of Canada

Publication Date: 2010

Physical Description: 46 p. : ill. ; 28 cm.

Subjects: Physicians, Family; Delivery of Health Care; Primary Health Care; Prescription Drugs; Diagnostic Imaging; Physician's Practice Patterns; Decision Making; Canada

ISBN: 9781897463819

Language: English

Material Type: Report; Online

Audience: Patient or Public

Location: Internet

Call Number: W84 D294 2010

Read Online

http://publications.gc.ca/collections/collection_2011/ccs-hcc/H174-19-2010-eng.pdf

From patients who know : a hospital handbook

https://bccalibrary.andornot.com/en/permalink/catalog119928

Openlab, University Health Network. [Toronto, ON]: Openlab, University Health Network , 2016.

Audience: Patient or Public

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Corporate Author: Openlab, University Health Network

Place of Publication: [Toronto, ON]

Publisher: Openlab, University Health Network

Publication Date: 2016

Physical Description: 87 p.

Subjects: Inpatients - psychology; Aged; Hospitalization; Adaptation, Psychological; Consumer Health Information; Patient Satisfaction; Patient Navigation; Patient Participation; Guidebooks; Patient Education Handout

Notes: "This Handbook is a product of OpenLab's Stuff Patients Want initiative. Stuff Patients Want is a participatory design initiative in which patients come together to share health care experiences they find frustrating. These patients are then armed with the tools (e.g. design, production)they need to bring their practical and inspired solutions to life. Stuff Patients Want is carried out in the Scandinavian participatory design tradition, driven by the idea that the people destined to use a product or service should play a critical role in designing it, and characterized by active collaboration between users and designers throughout the participatory process."